A new one-stop-shop of information for people with conditions that cause chronic fatigue has been launched in the UK.
Scottish based Chemical Survivors' Foundation originally set out to provide information for people suffering from chemical sensitivity. Finding that interest went well beyond this- into groups who suffer from other conditions causing chronic fatigue, the scope of the project was widened to include their needs.
Information is initially available via the web site http://www.chemical-survivors.com As funding allows, the hope is to extend this to leaflets and posters.
A lot of good work is being done by local groups across the UK. These groups are invited to participate in the project as a central hub to exchange information. Groups and individuals can become 'members' (at no cost) and participate in the project using the on-line discussion forums and by submitting information to the web site for viewing by others ( http://www.chemical-survivors.com ).
A survey is being conducted later this year and people who suffer from chronic fatigue are being asked to register to participate. The data collected from this survey will be reviewed by qualified health care professionals and the confidentiality of participants will be respected.
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Information for Journalists:
Background:
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Chronic fatigue conditions affect many people across the UK. They can be long-term illnesses and may affect people in different ways. Some people may be able to continue leading relatively normal lives at a somewhat slower pace, others may be unable to get out of bed.
A lot of research is conducted into the cause and treatment for these disorders but no definitive answers have yet been reached.
Conditions that cause chronic fatigue include:
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Myalgic encephalitis (ME) also known as Chronic Fatigue Syndrome (CFS)
Fibromyalgia
Chemical Sensitivity (MCS)
Gulf War Syndrome (GWS)
More information:
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Resources available via the web site http://www.chemical-survivors.com
Journalists are welcome to submit questions to our members using the on-line discussion forum 'Media Centre' http://chemical-survivors.infopop.cc/6/ubb.x?a=frm&s=9996004411&f=3536019411
New press releases and copies of our regular newsletters will also be posted in this forum for your viewing.
Contact:
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NewsDesk
Chemical Survivors' Foundation
http://www.chemical-survivors.com
mailto:NewsDesk@chemical-survivors.com
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